I am VERY hesitant to do this on my blog, but I am asking if you might consider donating to this project, and if you are unable to, or do not wish to make a monetary donation, could you please consider sharing the link with others you know who might donate or who wish to learn about Sjogren’s Syndrome?
Kickstarter is an innovative way to make creative projects happen, when traditional sources are not available. Donation amounts can be as small as one dollar!
This book of thirteen stories about those who live with the often misdiagnosed autoimmune illness Sjögren’s Syndrome, includes my own personal story.
Christine Molloy a fellow Sjogren’s sufferer is the person publishing the anthology. Here is an excerpt from the “blurb” about the book (you will find the extended version , as well as two additional updates on the link above):
TALES FROM THE DRY SIDE: THE PERSONAL STORIES BEHIND THE AUTOIMMUNE ILLNESS SJÖGREN’S SYNDROME
Imagine for a second what life would be like if for years, you searched for answers to mysterious physical symptoms that were so severe, you could no longer participate in the daily activities of your life. What your life would be like if not only did the medical community doubt your sanity, but you begin to question it yourself. For approximately four million people in the United States, including tennis superstar Venus Williams, this is often a reality because they have Sjögren’s syndrome; an autoimmune illness that severely affects the moisture producing glands in the body. It is difficult to diagnose and even more difficult to effectively treat as there is no cure.
Thank you for your consideration, and for any help you can give….even simply becoming educated about Sjogren’s and spreading the word!